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#chronicillness

59 innlegg45 deltakere10 innlegg i dag
Offentlig
Broadwaybabyto

Medical errors kill, maim and traumatize. As a disability advocate, I hear stories of medical negligence almost every day. I’ve got more than a handful of my own stories.

Few are as egregious a this one.

A young woman seeks help for abdominal pain. At first she’s dismissed as having PCOS.

They later find a 25cm (!!!) cyst on her ovary and proceed to do a total hysterectomy and resect part of her bowel and appendix.

She barely survives, and when she regains consciousness in the ICU is told she’s lost her womb and has stage four cancer.

That alone would be difficult to deal with, but then she’s later told she doesn’t have cancer and the hysterectomy and surgical menopause were unnecessary.

She tries to focus on the positive (not dying of cancer), only to have the medical team change course again and confirm that she actually DOES have stage four cancer but in her appendix and lymph nodes and not her uterus or ovary. Pp

The gauntlet of emotions this woman must be dealing with is heartbreaking.

How a medical team can get something this wrong this many times on ONE patient I will never understand.

As always, try and have an advocate with you at all times. I’m unsure if it would have helped in this scenario, but we all need a second set of eyes and ears in the room.

Ask questions. Get a second opinion. Don’t be afraid to speak up if you feel you’re being mistreated. Reach out online for support from other patients and caregivers… we will help you.

people.com/woman-32-has-hyster

People.comWoman, 32, Gets Hysterectomy Due to Tumor on Her Ovary. Doctors Later Apologize When Biopsy Shows No CancerRhian Butlin, 32, underwent an unnecessary hysterectomy after doctors thought a tumor on her ovary was cancerous.
#medicalerrors#iatrogenic#disability
Offentlig
Broadwaybabyto

The measles outbreak in Ontario is impacting more than 800 people, including the vaccinated.

Among the fully vaccinated sick with measles, 20-39 year olds have the largest number of infections.

I would have assumed it would be older groups due to waning vaccine effectiveness… so this intrigues me.

More people with young children? More socializing? What’s the X factor? Are repeat Covid infections playing a role?

You can speak to your doctor about getting a titre check to see if you need a booster, and a well fitted respirator like an N95 provides an extra layer of protection!

publichealthontario.ca/-/media

#measles#vaccines#wearamask
Offentlig
Broadwaybabyto

This is the longest I’ve ever gone without publishing an article, and the stress of not having anything ready is weighing heavy on my heart

It’s ironic considering how often I write about the importance of resting and listening to your body when it needs a break.

I’m so grateful for the Disabled Ginger community, but my body and brain clearly need a break.

I sit down to write everyday, and so far all I have is 30+ drafts with titles, a few images and (at best) two lines of actual content.

This is the harsh reality of chronic illness. It doesn’t matter how much you WANT to do something… if your body says “No”… Its a No.

You can’t try harder your way out of it. You can’t play through the pain.

The more you try to fight your body, the harder and longer the crash.

If you’re struggling to rest right now, take this as a sign to unplug. Relax. Recharge. Give your body what it’s crying out for and do it without the guilt.

We will all be here for you when you’re ready.

Sharing my article on radical rest from the archives, because I need the reminder & maybe so does someone else:

disabledginger.com/p/its-time-

The Disabled Ginger · It's Time to Throw Away the 'Coulda, Woulda, Shouldas' and Practice Radical RestAv Broadwaybabyto
#chronicillness#disability#selfcare
Offentlig
Broadwaybabyto

If MAHA truly wanted to tackle the chronic illness epidemic, they would provide the following:

Free respirators, Covid/flu tests and vaccines

Clean air in public spaces

Paid time off/sick leave

paid childcare

Mandatory masking in healthcare

Universal healthcare

Universal basic income

They don’t want to end the chronic illness epidemic, they want the chronically ill to disappear. There’s a big difference.

It’s eugenics on full display, and people are buying it because of their own internalized ableism.

They need to believe chronic illness can’t happen to them. That if they do the “right things” they will be fine.

Everyone is only temporarily abled. Help us fight for better social supports, healthcare and inclusion. It benefits everyone.

#maha#uspoli#fascism
Offentlig
Broadwaybabyto

The man in charge of HHS used the R slur in an FDA meeting where he derided children with disabilities as well as people with autism.

This is the man in charge of health and human services for the entire United States.

RFK Jr is a snake oil salesman and a eugenicist. He speaks of disabled people as though they don’t deserve to live, and I truly believe that’s what he thinks of us.

He’s not going to cure autism (it’s not something that needs to be cured). He’s not going to cure the chronic disease epidemic.

He’s going to disappear us. Whether in ‘wellness camps’ or by making it impossible to access the treatments and supports we need to survive.

This article is deeply distressing:

bloomberg.com/news/articles/20

#rfkjr#hhs#chronicillness
Offentlig
Broadwaybabyto

I understand wanting to go 'back to normal'. Pandemics are traumatizing and scary. Of course people want to forget them.

But they don't end when we decide we've had enough. The threat doesn't go away because we have 'Covid fatigue' or because we’re sick of masking.

We must stop denying the reality that Covid is still with us, still killing and still disabling people.

We must work on our collective trauma and push for common sense measures like masks in healthcare, free respirators and tests and clean air in public spaces.

“Back to normal” isn’t working. It’s a mirage. The comfortable lie.

But we can move towards a new normal together. One where everyone is safer and healthier. It’s not too late.

#covidisnotover#covidisairborne#longcovid
Offentlig
Irish ME/CFS Association

Informal notes of Tom Kindlon @tomkindlon (an Irish ME/CFS Association trustee) on a Community Law & Mediation webinar, “Housing supports for people with disabilities”, organised by the Irish ME Trust in April 2025

1drv.ms/b/s!AoHfldspRkWU14Fk8P

#chronicillness #Disabled #Disability @chronicillness
@spoonies
@disability
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Community Law & Mediation Access to Social Housing Supports - Law and Rights 3 April 2025 Mary Heavey - Solicitor Image of some law books
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