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Chronic Illness Humor Funny<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicpain" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicpain</a> <a href="https://mastodon.social/tags/pain" class="mention hashtag" rel="nofollow noopener" target="_blank">#pain</a> <a href="https://mastodon.social/tags/backpain" class="mention hashtag" rel="nofollow noopener" target="_blank">#backpain</a> <a href="https://mastodon.social/tags/legpain" class="mention hashtag" rel="nofollow noopener" target="_blank">#legpain</a> <a href="https://mastodon.social/tags/footpain" class="mention hashtag" rel="nofollow noopener" target="_blank">#footpain</a> <a href="https://mastodon.social/tags/neckpain" class="mention hashtag" rel="nofollow noopener" target="_blank">#neckpain</a> <a href="https://mastodon.social/tags/migraines" class="mention hashtag" rel="nofollow noopener" target="_blank">#migraines</a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#fibromyalgia</a> <a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener" target="_blank">#eds</a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener" target="_blank">#heds</a> <a href="https://mastodon.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#rheumatoidarthritis</a> <a href="https://mastodon.social/tags/endometriosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#endometriosis</a>

sickandsesame 🍉My vertebrae are moving. Like my neck is. They're doing this thing where they click or pop and I get lots of symptoms from it. It can feel like swelling or pinches nerves. I get the feeling there's not enough blood in my brain, burning pain in my fingers, numbness weakness paralysis.What could be swelling there? Who would I see to get care? Please boost!<a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener" target="_blank">@disability</a> <a href="https://disabled.social/tags/eds" class="mention hashtag" rel="nofollow noopener" target="_blank">#eds</a> <a href="https://disabled.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#hEDS</a> <a href="https://disabled.social/tags/pwme" class="mention hashtag" rel="nofollow noopener" target="_blank">#pwme</a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a> <a href="https://disabled.social/tags/bedbound" class="mention hashtag" rel="nofollow noopener" target="_blank">#bedbound</a>

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmunememes</a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#fibromemes</a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#fibromyalgia</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/chronicillnesslife" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesslife</a> <a href="https://mastodon.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#rheumatoidarthritis</a> <a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener" target="_blank">#eds</a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener" target="_blank">#heds</a> <a href="https://mastodon.social/tags/ehlersdanlos" class="mention hashtag" rel="nofollow noopener" target="_blank">#ehlersdanlos</a>

Chronic Illness Humor FunnyArtist: Shen Comix but I changed words for chronic illness<a href="https://mastodon.social/tags/jointpain" class="mention hashtag" rel="nofollow noopener" target="_blank">#jointpain</a> <a href="https://mastodon.social/tags/joints" class="mention hashtag" rel="nofollow noopener" target="_blank">#joints</a> <a href="https://mastodon.social/tags/jointhealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#jointhealth</a> <a href="https://mastodon.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#rheumatoidarthritis</a> <a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener" target="_blank">#eds</a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener" target="_blank">#heds</a> <a href="https://mastodon.social/tags/ehlersdanlos" class="mention hashtag" rel="nofollow noopener" target="_blank">#ehlersdanlos</a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmunememes</a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#fibromemes</a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#fibromyalgia</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/chronicillnesslife" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesslife</a>

maloki 🍍:ghostbat:Physiotherapy, day 5, adaptability

Chronic Illness Humor FunnyI'm way too clumsy to have these fragile joints.<a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener" target="_blank">#eds</a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener" target="_blank">#heds</a> <a href="https://mastodon.social/tags/joints" class="mention hashtag" rel="nofollow noopener" target="_blank">#joints</a> <a href="https://mastodon.social/tags/jointhealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#jointhealth</a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a>

Sibylle Dahrendorf🎥 <a href="https://mastodon.social/tags/Documentary" class="mention hashtag" rel="nofollow noopener" target="_blank">#Documentary</a> <a href="https://mastodon.social/tags/ChronicallyIgnored" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicallyIgnored</a> Only a few days left until June 20th. I would be very grateful for sharing, so that as many people as possible can be reached! Thank you so much for your support! A Wake-Up Call To Politics, Medicine & Research<a href="https://mastodon.social/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> <a href="https://mastodon.social/tags/SmallFiber" class="mention hashtag" rel="nofollow noopener" target="_blank">#SmallFiber</a> <a href="https://mastodon.social/tags/SIBO" class="mention hashtag" rel="nofollow noopener" target="_blank">#SIBO</a> <a href="https://mastodon.social/tags/Autoimmunity" class="mention hashtag" rel="nofollow noopener" target="_blank">#Autoimmunity</a> <a href="https://mastodon.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MCAS</a> <a href="https://mastodon.social/tags/FQAD" class="mention hashtag" rel="nofollow noopener" target="_blank">#FQAD</a> <a href="https://mastodon.social/tags/FQToxicity" class="mention hashtag" rel="nofollow noopener" target="_blank">#FQToxicity</a> <a href="https://mastodon.social/tags/FlagylToxicity" class="mention hashtag" rel="nofollow noopener" target="_blank">#FlagylToxicity</a> <a href="https://mastodon.social/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDS</a> <a href="https://mastodon.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#hEDS</a> <a href="https://mastodon.social/tags/Marfan" class="mention hashtag" rel="nofollow noopener" target="_blank">#Marfan</a> <a href="https://mastodon.social/tags/CCI" class="mention hashtag" rel="nofollow noopener" target="_blank">#CCI</a> <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://mastodon.social/tags/LongLyme" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongLyme</a> <a href="https://mastodon.social/tags/VacInjury" class="mention hashtag" rel="nofollow noopener" target="_blank">#VacInjury</a> <a href="https://mastodon.social/tags/LongList" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongList</a> <a href="https://mastodon.social/tags/LongTragedy" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongTragedy</a> Film Link here: 🎥<a href="https://vimeo.com/ondemand/chronicallyignored" rel="nofollow noopener" translate="no" target="_blank">https://vimeo.com/ondemand/chronicallyignored</a>

Daniel SwainIntriguingly, many such folks have <a href="https://mastodon.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#hEDS</a> or other forms of "symptomatic hypermobility" of joints, tissues, and other structures. There is certainly a correlation, but is it cause or effect? The debate continues, but emerging consensus seems to be: it can go either, or both, ways!

Daniel SwainWhile <a href="https://mastodon.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#hEDS</a> has a clear heritable pattern but isn't yet linked to a specific gene, <a href="https://mastodon.social/tags/YAOS" class="mention hashtag" rel="nofollow noopener" target="_blank">#YAOS</a> is considered to be a "genetically transitional" condition--wherein a genetic mutation (in <a href="https://mastodon.social/tags/NOD2" class="mention hashtag" rel="nofollow noopener" target="_blank">#NOD2</a> gene) is a necessary but insufficient condition to have symptomatic disease.

Daniel SwainIn threads from prior years, I've discussed my own personal experience with <a href="https://mastodon.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#hEDS</a> in some depth--so I won't do that again here. But I did want to use this opportunity to draw some connections that may be interesting, and perhaps even helpful, for some folks reading.

Daniel Swain<a href="https://mastodon.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#hEDS</a> is the most common form of EDS (though there are 13 (!) recognized subtypes); it was once thought to be quite rare, but recent evidence suggests is far less so--affecting *at least* ~1 in 200 people (some estimates are even higher). Hardly rare are population scale!

Daniel SwainI have what's termed the "hypermobile" type of EDS (<a href="https://mastodon.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#hEDS</a>), which is characterized most (in)famously and outwardly visibly by excessive flexibility of limbs, joints, and ligaments. But in reality, the most disruptive symptoms and consequences extend well beyond that.

Daniel SwainThe Ehlers-Danlos Syndromes are a collection of somewhat "loosely affiliated" (pun intended) conditions linked by their apparent association with connective tissues that are in some way faulty, dysfunctional, or "misbehaving" in a way that affects nearly every body system. <a href="https://mastodon.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#hEDS</a>

Daniel SwainMay is Ehlers-Danlos Syndrome Awareness Month, hence the timing. But I also wanted to take this opportunity to reflect on a broader range of issues and conditions, not only because of my personal experience with a widening range of them but also in context of recent events. <a href="https://mastodon.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#hEDS</a>

Daniel SwainSince it's May (almost missed it!), it's once again time for my annual thread on chronic medical conditions from my perspective as an informed patient & also professional navigator of complexity as a scientist-communicator, albeit one outside the biomedical space. [Thread!] <a href="https://mastodon.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#hEDS</a>

Niamh GarveyMy <a href="https://mastodon.ie/tags/hEDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#hEDS</a> is so happy the intense heat has stopped (yes, 21degree direct sun is intense to me) but my <a href="https://mastodon.ie/tags/Arthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#Arthritis</a> is now aching from the dull heavy rain.There is no winning in my body. But my mind is delighted with the rain, as it's what the land needs.

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