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#mecfs

170 innlegg78 deltakere7 innlegg i dag
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Anti. 🐘

· A new study in PNAS found elevated oxidative stress was a shared characteristic in both #MECFS and #LongCOVID
· RECOVER-Treating Long COVID, the clinical trials initiative run by the Foundation for the NIAID, has announced that it will hold a second annual hybrid workshop discussing the initiative’s research
· A clinical trial in the U.K. called PHOSP-I is recruiting to test the monoclonal antibody Tocilizumab

thesicktimes.org/2025/07/15/re

The Sick Times - Chronicling the Long Covid crisis · Research updates, July 15 - The Sick TimesA new study in PNAS found elevated oxidative stress was a shared characteristic in both myalgic encephalomyelitis (ME) and Long COVID.
#ResearchUpdate#COVID19
Tom Kindlon

Coverage of the July 9 webinar which covered "new findings about the underlying biology of infection-associated chronic conditions (IACCs), as well as discussions about how patient engagement leads to better research"

thesicktimes.org/2025/07/09/li

Image is from the Science for ME weekly update

@thesicktimes
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

ahimsa

"Severe ME Artists Project 2025"

meaction.net/2025/07/10/severe

#MEAction has announced their Severe ME Artists Project for 2025 in recognition of Severe ME Day on August 8th.

Anyone who identifies as having severe ME can participate.

If you need help submitting your artwork send email to sMEartistsproject@meaction.net

Submissions are due by July 24.

@mecfs

#MEAction Network · Severe ME Artists Project 2025Learn more about this year’s project
#MEcfs#PwME#SevereME
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ahimsa

Another quote:

“Infection is one of the most well-known triggers of ME,” says study author Suzanne Vernon, Ph.D., the research director of the Bateman Horne Center in Murray, UT, and one of the nation's leading researchers in ME/CFS.

“It was pretty obvious that this was going to be an issue, and RECOVER provided the perfect opportunity to put numbers to it.”

@mecfs @longcovid

#MEcfs#PwME#LongCovid
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Tom Kindlon

2/
NIHR "is accepting full applications for research looking into the treatment and management of post-acute infection syndromes & associated conditions, including #longCOVID & myalgic encephalomyelitis/chronic fatigue syndrome (#MECFS)"

nihr.ac.uk/funding/post-acute-

s4me.info/threads/uk-house-of-

Image is from the latest Science for ME weekly update

#LongCovid #MEcfs
@mecfs #longcovid

*
Hollie

Folks with chronic health issues, I can't stress enough how much a good sun hoodie has helped me with handling summer

They're marketed toward outdoor athletes, and most of us with chronic illness are pretty outside that circle so you may have missed their awesomeness!

Here's a good video on comparisons between hoodies. I have two, one REI brand that seems to work well, and a Taema from Arcteryx that works a bit better.

(1/2)

#ChronicIllness #Fibromyalgia #MECFS

youtube.com/watch?v=z8cOuEifT9

YouTubeThe Best Sun Hoodies, Most Definitive Test Ever ConductedAv Adventure Alan & Co
Tom Kindlon

"Experts call new Canadian Long COVID guidelines “contradictory” and “deeply concerning”: Guidelines recommend exercise and therapy as treatments, following attempted influence from Paul Garner"

thesicktimes.org/2025/07/08/ex

Image is from the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

ahimsa

"The Tiger Who Came to Tea… and stayed" by @LongCovidAdvoc

thereforme.uk/p/the-tiger-who-

Many important issues in this article: the language gap, lack of research, and lack of clinical care for severe ME/CFS patients.

Bedbound patients have a harder time getting any type of medical treatment. They'll be excluded from most research studies. And on top of that, their symptoms and lived experience are often questioned.

@mecfs @longcovid

#MEcfs#LongCovid#ThereForME
Science for ME

Our latest News in Brief post has headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of July 7 - 13.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

s4me.info/threads/news-in-brie

@mecfs

Science for MENews in Brief - July 2025This thread has a Science for ME 'News in Brief' post for each week in July 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
Tino Eberl

📰 Hier findest Du täglich Informationen zu #Klima & #Wissenschaft auf Deutsch. Mit Deiner Unterstützung kann ich das weiterhin kostenlose tun. Ich möchte helfen, #Sprachbarrieren zu überbrücken und möglichst viele Meldungen mit Bezug zur #Forschung bereitstellen.

Werde Unterstützer-Mitglied: steady.page/klimacrew 👥

oder hilf' mit einer Einzelspende: ko-fi.com/tinoeberl 💶

SteadyKlimaCrewIch informiere über Zukunftsthemen, um Menschen vor Risiken zu warnen und Fortschritte sichtbar zu machen.
#Klimawandel#Klimaschutz#Science
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